Center Community Reports
Center for Bioethics 5-Year Community Report
Annual Report 2003-04
International Health Research
International Research Ethics:
A Needs Assessment of Research Ethics Capacity at Moi University and Indiana University
International Educational Module grant awarded: September 2005
Jean Monnet Educational Module on Comparative EU and US Law, Public Policy and Ethics in the Regulation of Research and Development in the Life Sciences
In September 2005, the European Union awarded the law school a grant to develop a Jean Monnet Module of Courses on Comparative EU and US Law, Public Policy and Ethics in the Regulation of Research and Development in the Life Sciences, funded by the European Union. This module is a collaboration with the law school’s
Center on International and Comparative Law and the Indiana University Center for Bioethics. The module will also draw on the resources of the law school’s Center for Intellectual Property Law and Innovation.
International Research Ethics:
A Needs Assessment of Research Ethics Capacity at Moi University and Indiana University
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The Responses |
Memorandum of Understanding Moi University/Indiana University
Standard Operating Procedures for Moi University
Lecture 1:
International Research Ethics: What makes international research ethical (or unethical)?,
Eric Meslin, PhD, director of the IU Center for Bioethics.
Lecture slides (776Kb PDF)
Lecture 2:
Ten years in Guatemala with Indigenous Peoples: Lessons I'm still to learn!
Mike Kowolik
Lecture slides (1739Kb PDF)
Experiences in Bioethics from Kenya: Equity, Informed Consent, and Community Participation in Research
John Sidle
Lecture slides (199Kb PDF)
Lecture 3:
Nigeria.
Kathleen Hall (Slides unavailable)
Family Health Needs Study: Bi-National Community Participatory Research
Mary-Beth Riner
Lecture slides (450Kb PDF)
Lecture 4:
ICIC
Ulla Connor (Slides unavailable)
Lecture 5:
The Pharmaceutical Industry and International Clinical Research: One Company’s Approach
Michael Clayman
Lecture slides (89Kb MS Power Point)
Human Stem Cell Study Group
The Human Stem Cell Study Group functioned during the 2001-2002 academic year. You can download the results of the group below.
Background
Among the interests of the Indiana University Center for Bioethics (IUCB) is to engage issues that raise profound moral questions and provide a resource to the IU community, to Indiana, and to the entire country. The 1998 reports by Wisconsin and Johns Hopkins University researchers respectively that they had isolated human embryonic stem cells raised important social, ethical, legal, and policy issues. Researchers, legislatures, health science campuses, the private sector, and society continue to grapple with these issues, so we believe it is fitting for the IUCB to provide an opportunity to engage in an informed discussion.
Purpose
The purpose of the Stem Cell Study Group (Study Group) was to examine the scientific, ethical, legal, social, and policy issues that arise from research involving human embryonic stem (ES) cells.
Goal
The primary goal of the Study Group was to inform the university and wider communities about various perspectives involved in this timely topic. After the completion of the Study Group, its members prepared its results within a white paper, which is featured at the top of this page. Views expressed would be those of the authors, not of IU/IUPUI.
Methods
The Study Group met on a regular (preferably biweekly) basis at the IU Center for Bioethics from January until June 2002. Each meeting was devoted to a presentation and discussion of a specific question (e.g., what are the sources of embryonic stem cells and are they comparable?; should the federal government or the state permit, or prohibit funding of ES cell research?) Each session was lead by a person knowledgeable about the subject matter (often an IU/IUPUI faculty member), and designed their talk around a discussion of a particular aspect of an issue or issues. Each sessions’ discussion and presentation was summarized by those who presented and attended for those who were unable to be at a given sessions. Emails were also circulated to participants when pertinent ideas and articles arose.
Participants
The Stem Cell Study Group was open to the Faculty and students of Indiana University (IUPUI and Bloomington campuses) and, by to others in the Indianapolis community. One desire of the group was to involve a diverse group of people from various university departments and specialities.
Diverse Perspectives:
Considerations About Embryonic Stem Cell Research
Health Related Philanthropy Study Group
Organ and Tissue Donation
Background
Eric M. Meslin, Ph.D., and Kimberly Quaid, Ph.D. received a $41,000 grant from the Indiana University Center for Philanthropy to study the philanthropic mechanisms of organ and tissue donation. The academic study of philanthropy has focused on private action for the public good. Included in this broad definition has been the study of the public good of improving health, but most work has been on the philanthropic contributions of time and money to health institutions such as hospitals and medical schools. Another area of philanthropic research has been on various determinants of giving. Yet one very obvious act of giving in the health field has been largely neglected in philanthropic research; the literal donation of self: blood, tissue, DNA, organs and bodies. There is a long tradition in bioethics research involving the ethical, legal and policy issues associated with donation, including factors involving the donation of bodies and their parts whether for transplantation, treatment, research, or education. The goal of this project is to bring together the methodology and results of these two fields of study—philanthropy and bioethics—to shed light on this most personal act of donation, what we call “health-related philanthropy.”
Health Related Philanthropy
The Donation Of The Body (and Parts Thereof)
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Annotated Bibliography |
Organ Donation Resources
News
A Majority of Americans Say
That if Killed in an Accident, They Would Want Their Organs Used for a Living Person Who Needed Them (WSJ / Harris Interactive Health Care Poll) - 9/03
Links
United Network for Organ Sharing
www.ustransplant.org
Minority Organ Donors
Indiana Organ Procurement Organization, Inc.
Death Row Organ Donation Resources
